The Diagnosis

As I sit here, laid up in bed with yet another slipped disc, my life finally makes sense.  Our son’s life finally makes sense. Last Thursday, July 5th, I walked into what I assumed to be a routine follow up appointment with Grant’s neurologist.  We had waited a few months to meet with a movement … Continue reading The Diagnosis

Life Lessons

My last sappy post of the trip, and then it’s back to the world of main man Connor, my wonderful husband who missed us dearly, weekly therapy, some more waiting…but mainly a feeling of relief. As his hand grabs mine to hold, I’m thankful he has the strength to do that. I’m thankful that he’s … Continue reading Life Lessons

The List

Here we are, the end of 2017 and we are only 3 and 1/2 weeks away from our UCLA visit. After months of waiting on a date, the call finally came and the Undiagnosed Disease Network at UCLA has scheduled our visit! They have run the whole exome DNA sequence and have the results. It’s … Continue reading The List